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  • thank you

    http://petitions.pm.gov.uk/autism-schools/ please sign this

    thanks to everyone who has signed this so far.
    you need to have a uk address.
    we have reached the 200 point so there will be a reply to everyone that signs from number 10
    downing street to their email address they used when signing the petition.
    i ask that anyone who knows anyone in the uk to ask them to sign this.
    thanks ..
    the school holidays are nearly over which will give me some time to write about daniels summer holidays when the school term starts.

    hope this finds everyone well and that you have all have a good summer

    christmas is looming again i spotted a xmas tree in woolworths. crazy eh its only august.

  • Vets, dogs and big teeth

    hello everyone.
    Daniel's doing great and really enjoying his new school.
    Daniel's dog Nugget went the vet yesterday while daniel was at school.
    Nugget has got a pollen allergy and he broke out in a red rash and lost some of his coat around his hip joints and under belly.
    Nugget will have to stay off fresh cut grass and take some steroids for 10 days hopefully it will clear up . the vet says its not uncommon for goldies to get eczma .
    Any way nugget had an injection and seems very happy and contented to day.
    i will take him for a walk in a bit and see how he gets on.
    i did have to nip back to vets yesterday on my own and i'm glad daniel was not with me as a man wearing two odd shoes came into the vets. Daniel would have noticed and would have said look thats mans got odd shoes on. Plus the guy sat down next to me with his muzzled dog which seemed quite nice natured. a lady sitting the other side of me had a very small yorkie huddled in her coat and shaking like the dog knew something was about to happen.
    after five minutes the guy wearing odd shoes was called and has he walked to wards the the vets rooms his dog did the back up routine and slipped his collar and muzzle which was all one piece.
    it ran past two babies that were in there car carry seats and went in attack mode on a terrier.
    the terrier was wearing a plastic collar to protect it's stitches and never stood a chance of protecting it self.
    the dog that got loose which was a collie crossed with a springer spaniel ( i mean spaniel's are quite soft dogs) collies can be tempermantal ) but it shook this terrier about like it was a rag doll.
    the sound was herrendous. it took me and three others to part them.
    just as we had succeded the dog went crazy and bit one of the guys who then lost his hold of the terrier and the attacking dog once again had the neck of the terrier gripped firmly in his mouth.
    the vet came out and managed to stand over the attacking dog and straddle him and got it in a bear hold while the muzzle and lead was reattached.
    the attacking dog had covered us all in its diarohea as it was pooing through out the attack.
    the lady who owned the terrier had collapsed on the floor while everyone esle was outside with there own pets to protect them .
    i have never seen any thing quite so horrible .
    the poor terrier was nearly ripped apart and there was people outside shaking,
    the noise of the attacking dog and the way it just kept attacking and biting the terrier despite four of us trying to hold it down was herrendous.
    its put me off vets for a life time i can tell you.
    When i hear on the news that dogs have shaken babies round like rag dolls and you think well why did they not stop the dog. let me tell you there is nearly no way of parting a dog thats attacking once it teeth are stuck in the flesh and if you try to pull them apart the dogs teeth just cut through flesh like knifes.
    all in all a very nasty experience and one i would not like to see ever again,
    people say throw water on them but who the hells got a bucket of water with them when they are walking down the street.
    i dont think this dog wanted to attack people though as it could have got the baby in its car seat when it walked right by to attack the terrier.#
    who knows maybe if the terrier was not close by it could have been the baby instead.
    it makes me feel sick thinking about it.
    i am going to ring the vets today to see how the terrier is.
    I'm just glad Daniel and Nugget were not with me.
    sorry if its a bit graphic in text but i just wanted people to know that even if a strange dog looks quiet and dosile it has the ability to attack. This was no pit bull or anything like it.
    i hope this finds everyone well

  • Autism school aquired

    http://petitions.pm.gov.uk/autism-schools/ please sign this

    i almost forgot to say .
    the home teaching of daniel ws short lived.
    AFTER THE MEETING WITH THE LEA.
    SOME WEEKS BACK.
    i forgot to update but its been exciting as daniel is going to an autism specific school.
    The children there are all autistic and he loves it.
    He even now looks forward to going.
    it just amazing to see the difference in him.
    He even now goes by taxi . something he would not do as he wanted to be us until the last moment at his other schools
    and so i used to drive there and back twice covering 80 miles a day just for school.so
    so i moved closer to it but then i could not send him any more as it was destroying him.
    but it seems the LEA listened here something solihull never did..
    so moving was a good thing in the end.
    He does not get detentions for thinking out loud anymore.
    the teachers are all very experienced where autism is concerned.
    and everyone in the school is more like a large extended family.
    he has made friends with the other kids and the staff.
    he njoys break times which are well structured .
    it has made a difference at home too.
    i know although it has very few children it wont effect him socially as the large
    amount of kids at previous schools just made him want to hide in the toilets all day as
    he could not sensory tolerate it.
    There is NO !! doubt about it.
    this was where he should of been all along.
    hundreds more children are still suffering and will always struggle to survive
    through mainstream and some non autism specific special needs schools.
    (please see my previous posting )
    where autism awareness and training just dont happen.
    it so unfair because i now know the diffrence it can make .
    i have seen it and experienced it with my own eyes.
    please get all your friends and their friends to sign my
    petition on the number 10 downing street petition site.
    if just one school was built then it was worth your 3 minutes to sign up.

    thank you in advance

    robin

    http://petitions.pm.gov.uk/autism-schools/

  • a message i replied too.

    A friend i met back when i was in my teens and who i still message through the internet recently sent me a message saying that she was going to be helping out with a autistic child next term at the school where she is a teaching assistant.""
    One part of the message that still amazes me is the part of" the class I am working in next school year will have an autistic boy he has quite extreme autism so I am quite scared as I know nothing about it "
    yes she is going to learn as much about it as possible now.
    but thats because she wants too.
    but this shows that schools are still putting children with ASD'S with Teaching Assistants that are not trained or have any understanding of autism.
    Yes she will only be helping out on days where his main teaching assistant is away.
    but this is not fair on the teaching assistant or the Child ..
    EVERY ONE KNOWS MY STANCE ON mainstream Schools for autistic kids.
    i believe AUTISTIC KIDS should go to AUTISM specific SCHOOLS where my SOn now goes.
    i have seen the the difference it makes

    You can sign my petition at

    http://petitions.pm.gov.uk/autism-schools/

    i replied to my friend .
    here is the reply.

    you will need to visit www.nas.org.uk .
    just prepare your self for what seem's like a very cheeky kid.
    they can be very literal and like routines to stay the same.

    but all autistics are different .
    they find it hard to understand or accept social rules.
    they can seem indifferent and show really challenging behavior.
    notice i say can because not all display autistic behavior .
    its sometimes is only apparent when they face situations they can not deal with.
    such as unstructured time such as break times or lunch in the dinner hall.
    Its no good expecting autistic children to follow normal school rules.
    also a lot of kids with autism get given detentions so they miss break times.
    quite a few autistics i know relish these as it gets them off the play ground .
    its complex and you will have to learn from the child.
    if something upsets an autistic child its no good forcing the issue.
    they get lows and depressions more than normal kids.
    and a simple thing like being told they cant sit in a certain chair can destroy them.
    also a lot of kids with autism have movement tics and can be very fidgety and a lot also have things such as adhd and add as well as OCD but like i say they are all different.
    the very best thing you can do is ask if you can talk to there parents and let them give you a insight into the child.
    even they will be learning evrey day about there child.
    one thing i do know from experience is never to raise your voice or get angry with an autistic child or adult.
    its hard not too.
    your point of view does not matter in their mind.
    they do not show empathy for others and it can seem like they almost spiteful.
    but the fact is they really cant help it and punishments and shouting at them does not work.
    Daniel has been shouted at school in the past and even sent out of class where he walked out of school .
    i think your school should offer you sort of autism awareness
    course.
    also if you attended anything like that you would invaluable to a lot of schools. as there are in 1 every 100 kids with autism and only a a very few TA's and teachers in mainstream schools knowing anything about it.
    autistic kids need some where to go melt down and let it all out.
    I my self dont think autistic kids should attend mainstream school. one its not fair on the child. Two its not fair on the teachers who are not given training and Three its not fair on the other kids either.
    but this government let LEA's place such children in mainstream schools and no one really knows how it destroys the child's mental health and well being unless you see it for yourself.
    as the child gets older (daniel went through normal infants and junior school)and two special needs schools which were not autism specific/ and one special needs school all most destroyed his mental health. they thought they could make him normal. by forcing him to do normal Neuro typical things.
    its not just the teachers having no understanding its the whole school environment.

    it causes major problems.
    if you was to see the same children who just could not get on in mainstream and non specific special schools in an autism specific school you would not think they were the same children.
    daniel actually likes school for the first time since starting.

    Saying that its very rewarding seeing an autistic child progress .
    although my stance is although its unavoidable and having seen my own son nearly destroyed by teachers that had no understanding of autism and schools that did not have the right facilities to cope with autism i think mainstream school and even special schools who only have training in learning difficulties and physical disabilities are not the place to teach autistic kids.

    but thats me.
    I'm just going on what my son has been through.
    but i also know hundreds of families who have been through the same thing.
    You will have been put in the deep end.
    you have to have the patience of a saint .
    be prepared for tantrums out of nothing .
    they can be very very polite and them extremely rude.
    they will be either being extremely quiet or never let anyone else get there point out.
    they dont like making eye contact.
    some teachers demand this off kids and its something you should not force on autistic kids. just because they are not looking at you does not mean they are not listening.
    also if they seem to understand it does not mean they understand.
    they can sometimes seem older than years but then they can seem younger than their years.
    most autistics will have an obsession about something. this can change day to day or last for ever.
    they expect you to know and like it but wont want to know about your hobbies or likes or their peers. this cause conflicts between them and other kids who easily dislike being dissed so friendships are hard to keep and make .
    they tend to dismiss things they dont like and they are honest so expect them to be quite rude.
    not all are like this.
    some are verbal some are non verbal.
    some are very very verbal.
    like i say they are all different each and every one.
    they just satisfy the triad of impairments which gives them their
    ASD.
    Good luck.
    let me know how things go.
    but if you can ' i advise trying to chat with their parents.
    no one knows their child like them.

    dont i go on.
    did i say i was autistic.

    you would not guess would you ..
    but everyone has a little autism.....

    take care
    robin

    so you see
    LEA'S and schools are still not doing all they can....

  • over flowing baths and never short of things to do.

    The home teaching of Daniel is going Ok .
    I have yet to drop this weeks work off as yesterday morning i left the bath running and i totally forgot.
    It took about three hours to mop up the water that ran through the floor and down into the kitchen.
    Nugget the dog thought it was time to go for a paddle .
    after 6 kitchen rolls and 7 bath towels and 3 small towels and lots of wringing out it was cleaned up.
    You would not even know what happened .
    Anyway today i have to go to the local rubbish dump to take some rubbish that was left over in the garden.
    So daniel is coming with me and later i will ask him to write about what happens to the rubbish people take to the local dump.
    I do not know now if i will able to drop off his completed work at the school today and i doubt if it will be looked until until tuesday and its a bank holiday
    on monday so its an extra long weekend.
    I have to mend the gate on the front sometime today as it has fell off and Daniel is worried about it so we will both try and get that fixed after picking up some
    wood from the local DIY centre.
    Then i need to start on the garden
    Daniel has some seeds he wants to sow and i have a few hanging basket brackets to put up as well so if we remember we will get some new drill bits but we always seem to
    forget them.
    Daniel seems happy that he is being taught at home .
    I am still waiting to her from the LEA to see if they are going to help send him to the right school.
    But at the moment i know he learning just as much if not more than if he was at the school they placed him and he is not depressed .
    So if it does take until until september then so be it.
    Its tough but its worth it.
    PLus Daniel has been going to his Nan's and granddad's once a week and that helps us recharge our batteries .
    Anyway time is moving on and i have lots to do.
    Hope this finds everyone well
    x

  • Autism and school

    Hello everyone.
    Its been a while but i can say a lot has happened.
    Some good some not so good.
    Firstly i have recently moved and now under a completely new LEA.
    I am at present also home teaching my son.
    He was at his present school for about a year , I say present has he is on the school role but i am teaching him at home.
    For the right child his present school is excellent but Daniel is not the right child.
    i doubt he will ever be the right child but unless he gets a place in an autism specific school we or he wont ever know and time is beginning to run out.
    There is a chance of a space at an autism specific school but its a matter of waiting to see if funding can be arranged.
    The sad thing about this is the fact that the LEA have wasted money in the past by not placing him where he should have been to begin with.
    The problem at the school where he is still presently on the role is by a teachers addmission is that he makes some teachers angry. And a recent comment WE have done our best . Daniel dont need them trying their best. He needs the right education with teachers who have right kind of training not teachers trying there best.

    Im sorry but a few teachers with basic training in autism does not mean that they know everything.
    i dont see how you can have basic training. You need to understand a lot more than a few basic things if you are to understand
    anyone with autism. the first rule is stay calm . How can teachers shouting breaking the first rule help Daniel.

    And the fact that they think he can change so he fits in to the big wide world when he leave school. You can not do that. if you could no one would have autism after being changed into a a normal person after going through school.
    Why do they think they can change him. all they do is make him feel depressed and the anger shown to him by some teachers such as shouting at him just makes him react.
    This may sound harsh but when you know the right schools are out there and its your child not getting the right placement and seeing what the wrong reactions and punishments do to him because he happens to have autism it outrages you.
    Can he help it if he dislikes being touched. does it mean he should get over the fear of being touched just because that person is blind or in a wheel chair . do we tell a person who cant see to stop worrying if a car is coming and just walk.
    It seems that his autism has not been taken into account on numerous occassions and the fact that he has disapeared and no one in the school knew if he had left the school or not has brought us to the point where i cant sit at home wondering if he is depressed or being punished for being autistic and do they know where he is.

    Could anyone sit at home knowing they had lost the whereabouts of there child even if they were not autistic.

    The head says they can do this and do that.
    but they cant because they dont have the man power.
    They could not even make it possible for someone to always be there to offer him support or comfort when he has been order out the class for saying things that to him are the truth. Back to the literal side of things, BUT thats daniel he says it like he sees it. they are supposed to according to educational statement of needs be sympathic to the reasons why he may say what he says. but they cant because sometimes other children in the class will laugh and then the teacher has to make an example to keep order. By dishing out play time detentions etc. This will not stop Daniel being literal . Shouting or getting angry wont teach him to be calm.
    It seemed ok considering it was not autism specific at first.
    Daniel now feels all the teachers hate him. They can not deal with him because they dont understand him.
    i was told other autistic children there follow all the rules so he should .
    Rules mean nothing to a child with autism plus all autistic children are different.
    i said it once i will say it again. if you have met one autistic person then you have met one person who is autistic.
    it thats word again. ""spectrum"". because every autistic person is different .
    I could be teaching Daniel until september . it could be until next week but the fact remains
    i know he is safe and wont be punished for being himself and while i am not the greatest brain on earth i'm sure we will
    be able to learn from each other until i get the funding from the LEA .

    so lets round this up.
    The teachers do not know how to deal with Daniel .
    They do know how to teach children who are blind or in wheel chairs.
    WHY BECAUSE THEY DONT HAVE
    difficulty with social communication
    difficulty with social interaction
    difficulty with social imagination.
    Daniel does not understand the unwritten social rules which most of us pick up without thinking.
    He will
    appear to behave 'strangely' or inappropriately, as it is not always easy for him to express his feelings, emotions or needs.

    Why should he be shouted at because the teacher has to make an example.
    do they force kids to climb a flight stairs in wheel chairs to show the ones who can walk that everyone must follow the same set of rules .

    No.
    so why do they try and force kids with autism to climb barriers they cant and then punish them when they bloody fail.

    He cant Change . Its like i said before

    AUTISM IS A REASON NOT AN EXCUSE

    Daniel has autism ocd and ADHD all these present behaviour difficulties if cetian things like loud noise or if he is touched
    or he may be honest to the point of rudeness.
    They say they cant allow this .
    The schools states that no child with a history of behaviour problems shall be considered.
    They tell me that they can teach him.
    Well he may be on the SChool role .
    He gets his attendance mark as well.
    But until they fund him at an autism specific school he remains at home with us.

  • Reply to p [Visitor] on support dogs

    p [Visitor] wrote the following reply to post http://autism.blog.co.uk/2007/08/29/reply_to_lisa_on_support_dogs_for_autism~2889953

    2008-01-04 @ 12:44
    i have wrote to you before about dogs for children with autism, i am all for it as my son has a dog but you cannot take your PET dog into a shop or cafe etc for health and saftey reasons unless it is a fully registered dog by Assistance Dogs UK even using the disability rights your son may be supported by your dog but you can not take the dog into public places like a guide dog there are reasons why. You dog needs to be trained a certain way by a quaified trainer by an organisation that does this for disabled people that is the law for these types of dogs. There are orgs that are doing this for children with autism in the uk but it is still in the pilot scheme stage. so it is happening these things take time there are things to iron out etc but it is working for us

    I say you could be right but this is what i know ..

    There is no actual law that states this in the uk.
    I have a letter from my an MEP that states.
    If you cant enter a building due to your disabilty either with or without help or support which includes animals as well carers or helpers etc then that shop or business is failing to comply with the your disabilty rights to be enable you to do so.
    Its not been tried in court as far i know but a dog does not have to be deemed certified to enable this support.
    And it's down to the disabled person or carer to decide if the dog is aiding them not a shop manager.
    any dog that helps support a disabled person in any situation is a support dog.
    I not saying take unrulely dogs into shops etc.
    a lot of breeds are very well behaved without becoming a guide dog for the blind or a failed guide dog.
    its an hygeine issue more than safety as any responsible
    dog owner would have arrange for their dog to have basic training .
    It's impossible to find the thousands of pounds to teach your dog to take washing out the washer etc.
    A dog can support an child or adult with autism just for being there. Nothing else needed . just to walk along side on a lead.
    basic dog training can achieve this and does not make it any un hygenic than a trained guide dog.

    you dont need a Id card saying the dog is a guide dog.
    If you can only enter that shop with the help of your dog then you have the right to have your dog with you.
    im not saying let evreyone in shops with dogs . just those with a diagnoses of a medical nature that have been shown to be able to get support from a dog.
    .
    i have in the past few months taken our dog in shops on a harness with my son and have not been approached once.
    most people have the sense to realise that no one would take a dog in a shop if it was not a support dog even if the person with the dog is not blind.
    people are not as igorant in the uk as most would have us think.
    a good high visabilty dog harness and a well behaved dog and all goes well.
    its not ideal but it works.
    as far i know it would discrimation to ban me and my son and our dog from any shop.

    if anyone else knows differentplease feel to comment and if you feel that something should be set up to
    make sure people with autism have access to support dogs please lobby your local Mp and MEP.

    you can write to them here
    http://www.writetothem.com/

    if your in the usa these links will be of help.
    http://www.4pawsforability.org/alldogs.html

    http://www.northstardogs.com/index.html

    This link takes you to new dog law in Uk.
    only some local councils enforce some of the rules.
    http://www.dogstrust.org.uk/information/atozofdogs/d/dogcontrolorders/?ciid=255863

  • ASD Video Glossary

    I have come across a great Autism spectrum disorder Video Glossary

    You have to register first but it's simple although it requires your email and name.

    This glossary contains over a hundred video clips and is available to you free of charge. Whether you are a parent, family member, friend, physician, clinician, childcare provider, or educator, it can help you see the subtle differences between typical and delayed development in young children and spot the early red flags for ASD. All of the children featured in the ASD Video Glossary as having red flags for ASD are, in fact, diagnosed with ASD.

    The LInk Is http://www.autismspeaks.org/video/glossary.php
    Norton flags the site as Safe so dont worry about spyware etc.

    Click here FOR ASD GLOSSARY

  • Happy New year

    Happy New Year Everyone..

    Here's wishing everyone a fantastic Happy NEW YEAR ....

    Will be up and Running to start writing again Soon.

    Best Wishes All
    Robin

  • Think Differently

    click here

    PLEASE JOIN THE NEW AUTISM CAMPAIGN.

    READ ALL ABOUT IT BY CLICKING THE BANNER ABOVE.

    THANKS

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